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Ethical Questions for the AAP Committee on Bioethics

 



October 7, 2002


Kathryn Moseley, M.D.
Henry Ford Health System
One Ford PL5A
Detroit, MI 48202

Dear Dr. Moseley:

According to the literature, you served on the AAP Committee on Bioethics, which issued a 1995 statement “Informed Consent, Parental Permission, and Assent in Pediatric Practice.” (1) This Committee approved the 1999 Circumcision Policy Statement.(2)  There appear to be conflicts between these documents, and I request your assistance in clarifying some ethical concerns. Given the importance of the circumcision issue to many people, clarification of these points would help us to accurately educate others about the AAP recommendations.

Citing the Bioethics Policy, the Circumcision Policy states that parents must make choices about health care for infants and young children because infants and young children are not capable of making their own decisions.(3)  However, these decisions are related to diagnosis and treatment for an ailment.(4)  Non-therapeutic circumcision is genital surgery performed on a child with no ailment, and circumcision is not treatment.
Question 1: Should parents make health care decisions for infants and young children that do not relate to an ailment or treatment? Please explain.

According to the Principles of Medical Ethics, a physician shall provide medical care and “regard responsibility to the patient as paramount.”(5)  The Bioethics Policy says “Pediatric health care providers . . . have legal and ethical duties to their child patients to render competent medical care based on what the patient needs, not what someone else expresses . . . [T]he pediatrician’s responsibilities to his or her patient exist independent of parental desires or proxy consent” (p. 315).
Question 2: Is a physician’s compliance with a parental request for non-therapeutic circumcision consistent with rendering “competent medical care based on what the patient needs?” Please explain how you reconcile these statements with the position of the Circumcision Policy that parents “should” make the decision about non-therapeutic circumcision, implying that doctors should comply with parental decisions.

According to the AAP Circumcision Policy, pain medication is “safe and effective in reducing the procedural pain associated with circumcision” (emphasis added, p. 689). The AAP policy on neonatal anesthesia states that the use of medication should be based on the same medical criteria used for older patients. (6)
Question 3: Can any pain be justified in a surgical procedure that the Circumcision Policy acknowledges is not essential to a child’s well-being? Please explain.

The Bioethics Policy says “A patient’s reluctance or refusal to assent should also carry considerable weight when the proposed intervention is not essential to his or her welfare and/or
can be deferred without substantial risk . . . Coercion in diagnosis or treatment is a last resort” (p. 316).
Question 4: Since infants are forcefully restrained and clearly protest being circumcised, and circumcision is not essential to a child’s well-being and can be deferred without substantial risk, is circumcision of an infant done by “coercion” and if yes, is this coercion justified? Please explain.

The Circumcision Statement takes the position that “it is legitimate for the parents to take into account cultural, religious, and ethnic traditions” (p. 691) when making a decision about circumcision. The reference for this statement is an article titled, “Caring for Gravely Ill Children.” (7)
Question 5: How does this reference apply to the situation of cutting off the foreskin when no ailment is present and no treatment is required?

I also notice that you served on the committee that authored the Female Genital Mutilation (FGM) Policy Statement.(8)  In that statement the AAP “recommends that its members decline to perform any medically unnecessary procedure that alters the genitalia of female infants, girls, and adolescents” (p. 155).

The parallels between cutting female genitals and cutting male genitals are notable. The FGM statement reports, “Some women have no recollection of the event, particularly if it was performed in infancy, while others deny that the procedure has had any negative effect on their health or sexual life” (p. 154). Similar claims made by circumcised men can be explained by psychological theory and principles.(9) The FGM Policy also states,

Parents are often unaware of the harmful physical consequences of the custom, because the complications of FGM are attributed to other causes and rarely discussed outside of the family. Furthermore, parents may feel obligated to request the procedure because they believe their religion requires female genital alteration (p. 155).

These statements may also be said for cutting male genitals.(10)

Noting the position of the AAP against FGM, a letter to the editor of Pediatrics called on the Circumcision Task Force to “afford the same protection to our male patients . . . . and refuse to perform unnecessary mutilating procedures on our patients simply because of their parents’ desires.”(11) In response chair Carole Lannon defended the Task Force’s position. “The critical distinction between female genital mutilation and male circumcision is the potential medical benefits of male circumcision.”(12)

As recently as 1973, female circumcision was suggested in a medical journal as a treatment for frigidity.(13)  Another author suggested female circumcision to treat a non-retractable clitoral hood.(14)  The surgical procedure was covered by Blue Shield until 1977.(15)  Some have suggested that if there were as much research seeking potential medical benefits for FGM as there is for male circumcision, more potential medical benefits for FGM would be reported.
Question 6: Would you approve of female genital mutilation at the request of parents in its most minor form (excision of the clitoral prepuce, similar to excision of the penile prepuce) if such a procedure were reported to have “potential medical benefits?” If no, please clarify the apparent conflict between these two Policies. Specifically, the Circumcision Policy implies complying with parental requests for cutting male genitals, but the FGM Policy recommends declining requests for cutting female genitals.

I would appreciate a prompt reply letting me know that you received this letter and providing an estimate of when you can respond in full. For your convenience, please use my email at crc@circumcision.org.

Thank you very much for your attention to this request, and I look forward to your response.


Very truly yours,


Ronald Goldman, Ph.D.
Executive Director


DELIVERY WAS VERIFIED WITH A RETURN RECEIPT. NO RESPONSE WAS RECEIVED.


1. American Academy of Pediatrics, Committee on Bioethics. Informed consent, parental permission, and assent in pediatric practice. Pediatrics.  1995;93:314-317.
2. Lannon C. Circumcision—The debate goes on. Pediatrics. 2000;105:685.
3. American Academy of Pediatrics, Task Force on Circumcision. Circumcision policy statement. Pediatrics. 1999;103:686-693.
4. American Academy of Pediatrics, Committee on Bioethics. Informed consent, parental permission, and assent in pediatric practice. Pediatrics.  1995;93:314-317.
5. American Medical Association. Principles of medical ethics. 2001. URL: http://www.ama-assn.org/ama/pub/category/2512.html.
6. American Academy of Pediatrics. Neonatal anesthesia. Pediatrics. 1987;80:446
7. Fleischman A, Nolan K, Dubler N, et al. Caring for gravely ill children. Pediatrics. 1994;94:433-439.
8. American Academy of Pediatrics, Committee on Bioethics. Female genital mutilation. Pediatrics. 1998;102:153-156.
9. Goldman R. Circumcision: The hidden trauma. 1997. Vanguard Publications, Boston.
10. Goldman R. The psychological impact of circumcision. BJU International. 1999; 83 (Suppl. 1):93-102.
11. Bartman T. Circumcision—The debate goes on. Pediatrics. 2000;105:681.
12. Lannon C. Circumcision—The debate goes on. Pediatrics. 2000;105:685.
13. Wollman L. Female circumcision. Journal of the American Society of Psychosomatic Dentistry and Medicine 1973;20:130-131.
14. McLintock D. Phimosis of the prepuce of the clitoris: Indication for female circumcision. Journal of the Royal Society of Medicine.  1985;78:257-258.
15. Wallerstein E. Circumcision: An American health fallacy. 1980. Springer Publishing, New York.


See also Circumcision, Ethics, and Medicine.

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